Skip to main content

U of MN appointment

Went well! First, I must address that I am feeling 100% better today! I woke up feeling like me! Totally had to be food poisoning. Anyway. We had an 8:45 am appt and we got there at 8:45am. Not like we were pushing it or anything, right?!! Today we saw a pediatric surgeon, Dr. Donovan Hess...he was another amazing U of MN doc., we loved him! He was so informative, almost too informative because we left going, well, either this...this...or this could happen and then we'll have to that...or maybe that...or maybe that!

In his opinion, just from what he saw today, he doesn't think it is just a birthmark (infantile heemangioma), that would shrink up and go away on it's own. He thinks it is a form of vascular malformation (a mass of blood vessels and nerves), that will not go away on its own. SO. We have many options, many of which we will not know what to do with until we know every little bitty thing about her particular malformation. It does look like hers goes in to her spine, so he knows its serious, no one knows how serious yet. We go to see the urologist in Feb. He said he thinks they will want to do a biopsy on it, the angiogram to see where the blood vessels run to, and then they will all consult. He also said, that if it is the more serious kind, and the worst case scenario does happen (surgery), then he does not recommend that we get it done in MN. He recommends the Children's Hospital in Boston. Yep. Boston, New York. SO. We have a lot to pray for BUT, alot to be thankful for right now. Here's a list:

1. Shelby is a beautiful baby girl.
2. Shelby is a healthy baby girl.
3. Shelby is a Happy baby girl.
4. Shelby is a laid back sweetheart!
5. Shelby loves to love.
6. The malformation does not hurt her.
7. The malformation is hidden to all but her diaper changers...
8. We have awesome, truthful, honest amazing doctors.
9. We have supportive family and friends.
10. It is not life threatening.
11. We have Jesus on our side! Yeah!
12. We all love eachother.
13. Did I mention she is an amazing baby?
14. I'm not stressed about it!
15. Tom is a little, but not ALOT!
16. Shelby has many people who love her.
17. We have a lot of time to make all of these important decisions.
18. God has put me in a place right now, where I am at the strongest point in my life to deal with this health wise, emotionally, and physically. Waaahooo!
19. We only live once and we are all making the most of it right now, this second.
20. Karma. The law of attraction...the whole world is on our side...(a book I'm reading, well, have read, and am reading over and over and over again...it's my second Bible.)

So, I could go on, but you get the picture! Thanks for all the support, prayers and good vibes! We appreciate every one!

Comments

Anonymous said…
Wow Megan - I am just so proud of how you are handling all of this! Totally inspiring and I will pray for little shelby. She sounds like she is handling it equally as well! :)
Anne said…
Megan, we are keeping you and your family in our prayers!!

Popular posts from this blog

There are two kinds of people: Part Two - The non-movers

Coffee cup in one hand, veggie/fruit smoothie in the other. No seriously, that's what I have on each side of me as I write. I'm smiling because of how funny this is, as it seems to also relate to this conundrum of a topic before us. There are two kinds of people, and there are definitely two kinds of beverages.  My caffeinated beverage on my left brings me a one sided joy that I cannot even begin to detail. I love my coffee. And I really do think it loves me back. At least for a while. As I peer out of the corner of my eye to the right, I see the greenish grainy drink to my right. Today the fennel seeds in it do not make it seem as dirty  I mean, like I just gathered them from the dirt without rinsing and sprinkled them in there kind of dirty. Maybe it was the splash of OJ I decided to add to it this morning. Now, I know that this drink loves me. It is good for many aspects of my life. Health, energy, sustenance, power. But I do not enjoy it as much. When I make my ...

There are two kinds of people: Part One

This topic has been on my mind for quite a few years, and I always tell my ultra hip (yeah right) self, that I should write about it. So finally, after this last revelation that, yes, there are two kinds of people in this world, I needed to get it off my chest. There are two kinds of people in this world. "But Megan?" you quickly rebut, "No there's not! There are so many kinds of people in this world. Short people, tall people, loud people, introverted people, French people, people who like food, people who are allergic to grass, dog people, cat people, this list is endless." And to you I say, "Well of course." But  here's the deal. When it comes down to it. We are all, but one of two kinds of people. And I'll kindly, yet firmly, break it down for y'all. There are two kinds of people in this world. And you WILL fall under one of these categories. Are you ready? Here, I'll set the scene. You are walking down the sidewalk....

A picture, a moment.

My husband and I went to Mexico last February. This was our last night there. Or was it? We had not gone on a vacation in 10 years! This photo is unique and amazing in so many ways. I had gotten a new camera, and all vacation, I would mess around with new settings. What time of day was this? Looks like a sunset right? It's not! It was a sunrise! I  had some strange setting, that I have not been able to replicate. But it made this look like our last night there, but it was our last morning. I awoke early so I could be on the beach when the sun came up.If I could keep a memory that included sense of smell, feeling, sound, and sight, it would be this, wrapped with a bow. I was the only one out there in the early hours, which was amazing in and of itself. I took a lot of other shots by the water, and a little while later when I was heading back, I turned around, and took a shot off the upper patio of the resort. And this is what I got. It is my favorite picture...